I took the boys last week for their 2 month and 4 year old check up and shots (with my mom, thank god!) and Oliver went first and checked out perfect.. I knew he would, not even a tear with all four shots (his eyes were probably all dry from all his other crying nonsense)!! And then it was Abe's turn, which I was nervous about... I really had a gut feeling something is wrong with him.
I told the doctor all my questions, concerns, his quirks and she informed me that she believes he has Tracheomalacia - which occurs in newborns when the cartilage in the windpipe (trachea) has not developed properly. Instead of being rigid, the walls of the trachea are floppy. Because the windpipe is the main airway, breathing difficulties begin soon after birth.Congenital tracheomalacia is very uncommon.
Here are the sympotons:
- Breathing noises that may change with position and improve during sleep (this is why we had to stay an extra day in the hospital, and he has since been a "noisy" breather and sometimes scary)
- Breathing problems that get worse with coughing, crying, feeding, or upper respiratory infections (he has a cold now so we know it does get worse at times, feedings have been downright a mess)
- High-pitched breathing (yes)
- Rattling or noisy breaths (his crying has always been a very hoarse quiet cry, to be honest it sounds like a cat is dying at times)
What will happen/ how we are treating it:
Congenital tracheomalacia generally goes away on its own by the age of 18-24 months. As the tracheal cartilage gets stronger and the trachea grows, the noisy respirations and breathing difficulties gradually stop. Persons with tracheomalacia must be monitored closely when they have respiratory infections.We also have been treating Abe for acid reflux,gas and colic (but now im not sure he was colicy) so we will continue that, such as feeding upright, twice a day zantac, lots of burping and gas drops. I also stopped nursing Abe, the doctor let me decide this on my own but he needs to be able to breathe easier when feeding as well as have a gentle formula that is consistent and not affected by what I eat (acidic foods, spicy, dairy, etc. all change the content of my milk and affect his windpipe). We started him on Doctor Browns bottles and by the first feeding, he was a changed baby and the feeding was not a mess or a battle. If things do not improve by 18-24 months, surgery may be required.
I did some more research and spoke with my doctor and Abe's pediatrician and it seriously all makes sense now. I had (severe) polyhydramnios because Abe wasnt swallowing the fluid as much as he should have been! Had he been born ANY earlier we may have been faced with some heartbreaking and devastating situation. He really has a mild case of it, some babies born with this do not breathe when they are born and/or need surgery very early on to repair and put a stint in. My doctors were always amazed that my uterus was able to hold all that fluid (6+ liters when you're only supposed to hold ounces) so well and I KNOW for sure now that there was a higher power helping my body.
Our little family had an extremely rough summer, not only dealing with this but now I see that we were only given what we could handle. I am really really grateful for my sweet baby boy!


























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